In this interview, we meet Anne Blondeel of SIOP Europe. Anne is leading implementation of the Survivorship Passport, which will be used in the PanCareFollowUp Care intervention study in Italy. Please introduce yourself and share with us why you joined PanCareFollowUp. My name is Anne Blondeel and I‘m a Project and Education Coordinator at [...]
The International Society of Pediatric Oncology's annual meeting (SIOP 2020) went virtual and PanCareFollowUp's Eline Bouwman of RUMC was there! She presented results from the project's qualitative study on facilitators and barriers of health behaviour support provision to childhood cancer survivors. At the virtual SIOP congress, I was given the [...]
The PanCareFollowUp Care study data from Belgium, the Czech Republic, Italy and Sweden is collected in a central Data Centre, overseen by Prof. Jeanette Falck Winter of the Danish Cancer Society. Please introduce yourself and share with us why you joined PanCareFollowUp. As a medical student, I had a job at the Danish Cancer Society [...]
In this interview, we meet Dr. Lars Hjorth of Lund University. Lars is leading the cohort study of the PanCareFollowUp Care intervention, which is being run in Sweden, Italy, the Czech Republic and Belgium. Please introduce yourself and share with us why you joined PanCareFollowUp. I am a paediatric oncologist with a long-standing interest in [...]
Over the coming months, we'll be sharing interviews with members of the PanCareFollowUp consortium. Next up is Dr. Helena van der Pal from the Princess Maximá Center in the Netherlands and the PanCare network, who has led the development of the PanCareFollowUp Care intervention. Helena also leads the communication and dissemination activities for the project. [...]
Over the coming months, we'll be sharing interviews with members of the PanCareFollowUp consortium. First up is the project coordinator, Prof. Leontien Kremer from the Princess Maximá Center in the Netherlands. Please introduce yourself and share with us why you joined PanCareFollowUp. My name is Leontien Kremer and I am the Coordinator of PanCareFollowUp. My [...]
Meeting 2020 style! The PanCareFollowUp team met for two days to discuss progress of the project. Normally, we would have been in sunny Amsterdam, but this year we met via Zoom. It's not as much fun as meeting in real life, but it's definitely been an interesting two days!
It's hard to believe we are starting the second year of the project! The team met in Amsterdam 09 - 10 Jan 2020 to share results from the first year and make plans for the next steps. Year 1 has been busy with developing the PanCareFollowUp Care and Lifestyle Interventions, including literature reviews, development of [...]
PanCareFollowUp partner CCI Europe was represented by Melanie Brunhofer at the RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2019 in Milan. The event brought together rare cancers patient advocates, researchers and oncologists from across Europe to actively participate in brainstorming sessions, debates and workshops to learn how to maximise the impact patient advocacy [...]
It's important to learn what survivors want and need as we develop our person-centred care interventions. So, we have been holding focus groups with survivors to ask them! On Wednesday, 20 November, we held a focus group with survivors in Brno, one of the locations for our upcoming study [...]
