In this interview, we meet Cecilia Follin and Lill Eriksson from the clinical team at Lund University in Lund, Sweden.
Please introduce yourself and share with us why you joined PanCareFollowUp.
Cecilia
I am Cecilia Follin a nurse and researcher at Lund University. I have been working in this field for 15 years and I would like to contribute to this project.
Lill
I am Lill Eriksson and I am data manager at Lund university, working together with Dr. Lars Hjorth, Cecilia Follin and the rest of the team in Sweden. I am also working with administration of the study in the clinic. I have been working as a research administrator for several years in the faculty of medicine. Close contact with survivors and data management are some of my tasks in the PanCareFollowUp study.
Introduce your clinic and how long-term follow-up is organised in your clinic/country.
Cecilia
I have a position at the Late effect clinic at the hospital in Lund. We meet 5 survivors per week at the clinic. Our team consists of one pediatric oncologist, a medical oncologist and one nurse at the clinic. During the consultations we meet the survivors all three of us. We have the possibility to refer the survivor to different specialists, including our rehabilitation team. All survivors receive a treatment summary with follow up recommendations.
Why do you think PanCareFollowUp is an important project?
Cecilia
PanCareFollowUp will bring different late effect clinics across Europe together to give the best care to the survivors. The care will be organized according to the survivors needs and preferences.
Lill
Because it is unique, when looking into so many aspects in life of the survivors.
What makes this project unique for you?
Cecilia
Working together with other clinics in Europe and to share their experiences.
Lill
This is the first study I get the opportunity to work in close contact with survivors.
What do you hope this project will achieve in general?
Cecilia
A proper care for all survivors across Europe. In addition, I hope survivors will be more educated about complications and take responsibility of their own care.
Lill
With better knowledge, practice and care, I hope survivors will have a better life.
What will this project add to long-term follow-up care in your clinic/country?
We will know more about the survivor’s experiences of the care and their needs.
What will be the most important benefit for survivors in your clinic/ country?
Cecilia
They will have the possibility to tell us how they experience the care we offer.
Lill
The person-centered care, the survivors will experience they are not being forgotten.
What’s the biggest challenge for your clinic in PanCareFollowUp?
Cecilia
The questionnaires. The survivors may think it is too many questions and it will take long time to complete them.
Lill
To get enough survivors to participate in the study. For some it will be challenging to answer the broad set of questionnaires.
What’s the most fun thing for you in PanCareFollowUp?
Cecilia
To be part of this big project and to listen to the survivor’s thoughts.
Lill
Learning so much new things from colleagues and survivors
What’s the most important benefit of your work within PanCareFollowUp for survivors?
We will make sure the data in the project is correct and the person-centered care will add to the quality of care for survivors.
What else do we need to know about your clinic or is there anything else you want to share?
We are never further away than a phone call.