Learn more about the PanCareFollowUp Care intervention in our latest publication in the European Journal of Cancer!
‘The PanCareFollowUp Care Intervention: A European harmonised approach to person-centred guideline-based survivorship care after childhood, adolescent and young adult cancer’ was recently published in the European Journal of Cancer (162: Feb 2022, 34-44). The paper describes how the consortium has co-developed the key components of the PanCareFollowUp Care Intervention: a PanCareFollowUp Survivor Questionnaire, Treatment Summary template, Survivorship Care Plan template, and educational materials for HCPs and survivors.
You can read the full open access version here.
Why is this paper important?
More and more children are surviving cancer as medical treatments improve, which is great news! However, many survivors will face late effects of their cancer treatments during their lifetime. That’s why they need different health care than their peers. However, this type of care is not yet available for many adult survivors of childhood cancer. In this paper, we share the PanCareFollowUp Care Intervention: a person-centred model for survivorship care, and helpful tools for the set-up of a clinic to implement such care.
What did we do?
We worked together with survivors and health care providers across Europe to develop the main components of a person-centred survivorship care visit:
- A Survivor Questionnaire that the survivor can complete before the visit, so the health care provider knows what to focus on and what the needs and preferences of the survivor are;
- A Treatment Summary template, to summarize the childhood cancer treatment;
- A Survivorship Care Plan template, to describe the follow-up plan that was developed by the health care provider and survivor together; and
- Educational materials for survivors and health care providers.
What is the impact?
The PanCareFollowUp Care Intervention is currently being implemented and evaluated in four European clinics in Belgium, the Czech Republic, Italy and Sweden. Through this paper, interested clinics can already access the PanCareFollowUp Care Intervention. In 2024, the lessons we learned in the four European countries will be used to update the Care Intervention. The updated Care Intervention will be made freely available in a Replication Manual through PanCare (www.pancare.eu). Our aim is that the PanCareFollowUp Care Intervention will facilitate implementation of person-centred survivorship care across Europe. This will help to improve access to survivorship care and quality of life for all survivors across Europe.
