It's hard to believe we are starting the second year of the project! The team met in Amsterdam 09 - 10 Jan 2020 to share results from the first year and make plans for the next steps. Year 1 has been busy with developing the PanCareFollowUp Care and Lifestyle Interventions, including literature reviews, development of [...]
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PanCareFollowUp partner CCI Europe was represented by Melanie Brunhofer at the RCE-ESMO-ESO Training Course for Rare Cancer Patient Advocates 2019 in Milan. The event brought together rare cancers patient advocates, researchers and oncologists from across Europe to actively participate in brainstorming sessions, debates and workshops to learn how to maximise the impact patient advocacy [...]
It's important to learn what survivors want and need as we develop our person-centred care interventions. So, we have been holding focus groups with survivors to ask them! On Wednesday, 20 November, we held a focus group with survivors in Brno, one of the locations for our upcoming study [...]
CCI Europe took part in the ESMO Congress 2019 in Barcelona, Spain. ESMO is the global stage for excellence in translational research, presentation of practice-changing data and multidisciplinary discussions. Bayer gave CCI Europe a great opportunity to present their organisation and campaign at their booth!
Check out the videos posted by survivors Jaap den Hartogh and Carina Schneider of CCI Europe. Jaap and Carina have been actively involved in PanCareFollowUp from the very beginning, contributing to the development of the interventions and informational materials on late effects, as well as keeping their networks informed about project activities. #raiseyourhandsforsurvivors https://www.facebook.com/EuropeCCI/videos/719732391782562/ https://www.facebook.com/EuropeCCI/videos/451148192279953/
On 18 September 2019, focus group discussions with healthcare professionals were held in Brno for the pre-implementation study. The study aims to identify barriers and facilitators for the PanCareFollowUp Care intervention to inform our Implementation Strategy. Rosella and Eline (RUMC) travelled to Brno (ICRC) to run the focus groups, which has six participants from FNUSA/ICRC [...]
At the PanCare 2019 Autumn Meeting (11 - 13 Sept 2019, Basel, Switzerland), Rebecca van Kalsbeek (PMC) gave an update on PanCareFollowUp. The programme covered many aspects of survivorship and gave room for survivors, their families and survivorship organisations to emphasize their views and give their inputs.
CCI Europe included PanCareFollowUp in their 'Initiatives Supporting Follow-up Care' this month. The organisation is a partner in PanCareFollowUp, represented by ÖKKH. The team in CCI Europe are active in communicating the project to their networks, as well as contributing to our research in person-centred survivorship care.
PanCareFollowUp was presented during the CCI Europe Conference, 23-24 May 2019 in Prague, which was held during the SIOP Europe Annual Meeting. The meeting was dedicated to the latest developments in Paediatric Oncology and included many interactive workshops. PanCareFollowUp's coordinator Prof. Leontien Kremer gave an overview of the project's interventions and planned activities. Prof. Leontien [...]